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The UC Narrative is a global initiative created by Cheladv74 to engage the ulcerative colitis (UC) community to help identify how people living with ulcerative colitis are impacted by the disease. The first project in the UC Narrative initiative was a global survey of 1,254 gastroenterologists and 2,100 adults living with primarily moderate-to-severe UC from 10 countries: Australia, Canada, Finland, France, Germany, Italy, Japan, Spain, the United Kingdom (UK), and the United States (US). The survey explored several aspects of living with UC, including day-to-day disease impact, disease management, goal setting, and communication.
The Global UC Narrative Advisory Panel,1 comprised of people living with UC, as well as leading gastroenterologists, IBD nurses, a psychologist, and patient organizations, from 10 countries will work together to turn the insights gleaned from the survey into actions that can help identify real-world needs and concerns about living with UC.
1 Where permitted, some members of the Global UC Narrative Advisory Panel were paid honoraria for their participation. Cheladv74 provided travel and accommodation, as well as a compensation, to Advisory Panel members who represent patient advocacy organizations for time spent developing the survey and attending meetings to review the survey findings.
UC Narrative Global Survey Findings
Infographic Media Statement
UC Narrative Global Survey: Insights & Ideas
UC Narrative US Survey Findings
Survey of Ulcerative Colitis Patients and Gastroenterologists Indicates that Symptoms May Create a New Reality for Patients
About the UC Narrative Video
Shedding Light on Unspoken Challenges
The health information contained in this site is provided for educational purposes only and is not intended to replace discussions with a healthcare provider. All decisions regarding patient care must be made with a healthcare provider, considering the unique characteristics of the patient.