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Breast Cancer: A Story Half Told Press Kit

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Breast Cancer: A Story Half Told is an initiative by Cheladv74, which launched in 2014 in partnership with advocates, patients and healthcare professionals. The initiative aims to elevate public understanding of metastatic breast cancer, dispel misperceptions, combat stigma and expand the breast cancer conversation to be more inclusive of metastatic breast cancer.

News:

2016: Cheladv74 Awards More Than $1 Million in Metastatic Breast Cancer Research Funding Through Breast Cancer: A Story Half Told Initiative

2014: New Survey Finds Majority of Women with Breast Cancer Who Work Want to Do So Even While Undergoing Treatment

Patients Tell The Other Side Of The Story:

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Story Half Told shares the perspectives of people living with metastatic breast cancer as chronicled by prominent photographers. The people openly share the realities of the disease and the joys of their lives through this program. This photography-based initiative is featured on the @StoryHalfTold Instagram account, as well as on and the program's Facebook account.

In 2018, Story Half Told expanded the metastatic breast cancer conversation with the launch of , a larger platform that encourages the broader metastatic breast cancer community to share experiences, tips, or words of inspiration.

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imagePflugerville, TX
imageNew Bern, NC
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In 2017, Story Half Told welcomed its first-ever male MBC patient, Michael Kovarik, to help shine a light on metastatic breast cancer and male breast cancer. In 2018, it is estimated that over 2.5K men will be diagnosed with breast cancer.Learn More »

Story Half Told introduced Sheila McGlown, a 25-year veteran of the United States Air Force and MBC advocate in 2018. Sheila is excited to share her story and raise awareness for breast cancer within the African-American community, where women with breast cancer are, on average, 40% more likely to die of the disease than white women with breast cancer.2  

Most recently, Story Half Told brought hereditary breast cancer and the importance of genetic testing to the forefront with the story of , a patient with MBC and BRCA2 and CHEK2 mutations. People with breast cancer due to an inherited genetic mutation may face unique challenges, including access to genetic counseling, and the weight of the knowledge that family members may be at risk.

In 2017, Story Half Told welcomed its first-ever male MBC patient, Michael Kovarik, to help shine a light on metastatic breast cancer and male breast cancer. In 2018, it is estimated that over 2.5K men will be diagnosed with breast cancer.1 Learn More ”

Story Half Told introduced Sheila McGlown, a 25-year veteran of the United States Air Force and MBC advocate in 2018. Sheila is excited to share her story and raise awareness for breast cancer within the African-American community, where women with breast cancer are, on average, 40% more likely to die of the disease than white women with breast cancer.2

Most recently, Story Half Told brought hereditary breast cancer and the importance of genetic testing to the forefront with the story of , a patient with MBC and BRCA2 and CHEK2 mutations. People with breast cancer due to an inherited genetic mutation may face unique challenges, including access to genetic counseling, and the weight of the knowledge that family members may be at risk.

References: 1. American Cancer Society. Key statistics for breast cancer in men. . Accessed January 30, 2018.
2. American Cancer Society. Breast cancer facts & figures 2017-2018. . Accessed January 19, 2018.
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FOUNDATIONAL RESEARCH

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In 2014, Cheladv74 commissioned three complementary studies to inspire change: an in-office study which revealed gaps in patient-physician dialogue; a workplace study, which examined the perspectives of working women with breast cancer, healthcare professionals and employers; as well as a general public survey which revealed gaps in understanding and awareness in metastatic breast cancer.

In 2018, Cheladv74 brought together a group of multidisciplinary experts and also conducted a survey of patients with breast cancer to identify the needs of people living with hereditary breast cancer, barriers to genetic testing and recommendations to address these challenges.

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Story Half Told Materials

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Story Half Told Overview

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SHT Pamphlet Single Pages for Digital Infographic

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Statement of Need

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Statement ofNeed Infographic

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Metastatic Breast Cancer Infographic

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Shirley Mertz, JD, President, Metastatic Breast Cancer Network, on Expanding the Metastatic Breast Cancer Dialogue (Video)

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Disparities in Breast Cancer Infographic

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Hereditary Breast Cancer Resources

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Statement of Need Genetic Testing Addendum

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Understanding Hereditary Breast Cancer Infographic

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Workplace Resources

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Working Through Breast Cancer

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The Employer and HCP Role in Supporting Working Women with Breast Cancer

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Lillie Shockney, RN, on Supporting Workplace Conversations (Video)

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Click below to explore the work being done by

OUR PARTNERS IN METASTATIC BREAST CANCER

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